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Description
This was defined as a 1-point to 2-point decline in the Revised ALS Functional Rating Scale (ALSFRS-R) total score over an initial three-month observational period

Monitoring Parameters Assess clinical response at 2-week intervals

doi:10.1111/cts.13109
I even wobbled up to the shed today with a bit of support and had a "new" b12 injection yesterday

10.1016/j.expneurol.2012.02.018 252 SimF
